Wednesday, 3 May 2017

Temper tantrums and breaking a habit

The terrible two's have started early, and boy, that little guy can throw some epic tantrums.
I'm assuming that once Ed's language improves, it will help matters...his frustration at not being able to ask for things is palpable at the moment. To be honest though, I started to think that maybe there was something we could work on together to help his moods - getting his sleep sorted out.

I hang my head in shame, when I say that at nearly 2, Ed still wakes up for milk at night. It's something that is complete habit now, and I think is getting in the way of him eating properly too. It's just been so hard to bring ourselves to break the habit, even though we know that having interrupted sleep is no good for anyone. Well, the time has come to bite the the bullet and give it a shot. Si and Sheila are away in Canada at the moment, so I thought having complete control of the situation would make it slightly easier.

And so far so good (though it's more out of fluke than good planning). Because Grandad and Alison are here, he's been excited and had later naps, therefore having a later bedtime the last two nights. Because of that he has slept through and then not needed such an early nap again the next day, therefore completing the cycle. Sleeping through has also meant he's not been tempted by milk, and is therefore eating better so consequently sleeping better. Man, this parenting is complicated stuff!

It's equally a marvel and a frustration that just extending his bedtime by an hour has had such a huge effect on his sleeping. If only we'd tried it ages ago! Hopefully I'm not speaking too soon though - it's only been two nights on the trot that he's slept well. I do think it has improved his mood as well though, so fingers crossed we're on the right track.

So much of motherhood is trial and error, and you'd think the second time around I would remember that certain things help, but I've been in such a fog it's been hard to read the signs recently. Hopefully by the time Si gets back we'll have got it cracked, and we can move on to the next big hurdle - moving him into a toddler bed!! Eeek!

tantrum, crying, baby, child, toddler, MS

Not my child...though I can tell the scream is similar!

Tuesday, 18 April 2017

The Chest Infection

I'm racking my brains as to why I'm finding it so difficult to write at the moment. I don't think it's tiredness because I've caught up on a lot of sleep over the past week. I just have a severe lack of creativity at the moment. I'm just.......meh. Maybe it's down to medication? I feel like any creativeness and imagination has just been zapped away, and I'm really struggling to motivate myself. I can't even be bothered to do any beloved sewing.

Then again, it's been another tough old week so it's hardly surprising. 

I've just been on a course of antibiotics for a chest infection. Of course, things are never bloody simple where I'm concerned. I went into the doctor to get checked out for my chest, but because my blood pressure was so low she was really concerned. She started to bandy the word 'sepsis' around (sepsis is a very serious complication you can get following an infection) so I was properly on edge! I had a follow up the next morning, and she told me to go down to the hospital for some more tests. 5 hours later and 'all clears' meant I was discharged with, yep, a chest infection. 

I received brilliant care and service at the hospital, but it was so sad to see how stretched they were, and they had a real shortage of beds. Having to have a canula put in in a corridor alongside other patients was a bit of a strange experience, even though there were screens. We all looked like we were in a little holding pens.....then again, I guess we were! The whole day really took it out of me. 
I've been a good girl since though. The doctor's said rest, so for once I've been doing nothing but rest, and I think I've made a much quicker recovery because of it. 

Of course, having Tysabri when I was coming to the end of a cold probably wasn't a good move. Because it suppresses my immune system I was warned that it could make the cold worse, which it certainly did. Hey ho, I've learnt for next time. Generally though, Tysabri is still going well. I had a neurological review recently, and my consultant was really pleased with my progress. Although Tysabri can't repair damage, it's certainly been enough to push me into a good remission which is great news. 

So onwards and upwards now. They sun is shining, I'm in a happier mood, and I can't wait for summer. 


Monday, 27 March 2017

Mother's Day post

Ok, so this is belated, but better late then never!

I wanted to share with you the guest blog post I wrote for MS UK website last week. It's all about what Mother's Day means to me. Enjoy :)


Mother’s Day is upon us, and it’s the time of year when I reflect on how lucky I am.
I’m the mother to two beautiful children, but it hasn’t always been the easiest ride.

Chloe photo for mum blogI was diagnosed with MS when I was 18 years old, which really put a spanner in the works when it came to making future plans. Back then I didn’t have access to the information I do now, so I felt very much alone. The future seemed daunting and scary.
With that in mind, I couldn’t even imagine having a family and being strong enough to cope with everything motherhood throws at you. How would I be able to cope with labour when I was so fatigued? How could I cope with night feeding? Broken sleep? And even just physically carrying a child all the time? It seemed terrifying to say the least. So for years I resided myself to the fact that I would never be a mother.
It’s only when I reached my late twenties that me and my husband decided to take the plunge and start a family. All of the doubts were still there, but the thought of never being a mother gradually overtook any fears I had. And I’m so glad we did it.
It’s very tough at times, and my MS undoubtedly gets in the way, but in those early days I was amazed at how much my body adapted. Of course I was still fatigued, but I coped better than expected, and with help and support we found a way around it. I rested whenever I could, and though we didn’t get out much and socialise, I was content that we were doing what was best for us.
For all the tough times, motherhood is one of the most rewarding experiences I will ever have. I remember the overwhelming pride I had in myself for just getting through labour, and delivering this beautiful creature into the world safely. I knew it was going to be tougher for me as a Mum, but because of this even the smallest achievements had a greater significance for me.
I never think of Mother’s Day as being a celebration of me as a Mum though, but rather a time to thank other mothers for their help. My own mother. My mother-in-law. My friends and family members who are mothers. They help to take the strain when things become too much, and we stick together as a family. I want to thank them because they make coping with two children a joy instead of a worry. I truly couldn’t do it without them, and they make me the mother I am today. A happy mother who, despite the MS, feels confident enough to deal with the challenges motherhood brings.


To read more of the MS UK blog, you can go to